Tuesday, March 29, 2011

Bedroom move

Have been talking but keep putting off moving Cara into the shared bedroom for the 2 youngest girls. Was worried that Veronica would not be able to sleep when Cara cried and that I would not hear her to get up and nurse her. Yesterday I moved her crib out of our bedroom and into their shared room. Afternoon nap was a little of a challenge, Veronica and Cara played, Cara in her crib and Veronica standing by her to hand her toys LOL. Veronica finally got tired and laid down on her bed and went to sleep, about 15 minutes later Cara started to cry because no one was there to play with her LOL. Cara wont sleep until she is very tired and falling asleep. She wants to stay up and play or visit and go, go, go. So I got her up so she would not wake Cara and nursed her hoping that she would go to sleep, which she did but as soon as I tried to lay her down she was up crying. Last night was the big question on how they both would sleep in the same room. Veronica went to bed as normal and Cara stayed up until 9:30 when she finally passed out and we could move her to her crib without her waking up and crying. She was up at 12:30, and 3:00 to nurse and then first morning feeding at 5:30, luckily she goes back to sleep easily at those times. Both Veronica and Cara should be up in about 45 minutes which is 7:15am to start their day. My night surprising was easy and I think I got better sleep with her out of the room. Crossing my fingers that this continues to be a good thing. Hoping that we will be able to get Cara on a sleep time routine like Veronica. Next step weaning....Wish me luck there, got her weaned for the day just need to wean her at night now.

Thursday, March 10, 2011

Hospital stay

So Cara did not improve. In fact when I got home Friday night we deiced she need to go to emergency. Normally this would of been no big deal but without wheels or cash how to get there. I called my BF Cathy and asked if she could take us down and that if we had to wait long she could go home to bed as she had to work early in the morning. I kind of figured we would get admitted. We get to emergency and there is hardly anyone there, YEAH! but still have to wait. After 1/2 hour I go to the nurse and ask how much longer. He tells me that there are 10 people in the back still waiting to see the doctor so it will be awhile. I ask him to come and check Cara's oxygen levels because it they are low she will be staying for day or so. He replies sure and comes over with the O2 sensor the reading is low and he figures it is the batteries so go off to change them. He comes back and tries it again and it is still reading at about 30% oxygen in her blood, this is very bad it should read 100%. He tells me to bring her because we are headed to see the doctor because this can not wait! I turn to Cathy and thank her for bringing us and send her home to bed. Once we are in the back a Nurse comes over to take vitals and she too is concerned about the oxygen levels in Cara's blood. Once her temp is taken she is given Tylenol and she pucks it up so they have to give it too her again. We are then sent for x-rays of her chest. Let me tell you that is TONS of fun with a 10 month old. I stand behind the machine holding on to her arms so that they are up over her head for the first pic and then sideways and arms held in front without her moving. The side pic had to be taken 3 times because she would start to move toward her arms LOL. No crying and once I get her dressed and return to the emergency beds I see the doctor and he shows me her x-rays. He tells me she has pneumonia and that she needs to be admitted, hopefully in 3 days she will be better to go home. So we head back to the room and wait for a bed on the PEDs floor to be ready for her. While we wait the Nurse comes back in with a Lab tech and another Nurse. They need to get some blood from Cara and set up an IV. Now that is really scary for a parent to see and help with. She is a strong little girl and can put up quite the fight even with being as sick as she was. They try the IV on her hand first but are unable to fine the vain so the other Nurse tries one in the foot and hits it the first time. They draw a vial of blood from that point so they don't have to poke her again and then attach a IV and tape it up and put on a splint so that she cant move her foot or pull it out. On the other foot they attach a line for her heart and oxygen sensor. Finally we head up to PEDs and it is 2:00am by this time. Great staff on the PEDs floor. They take her out of my arms and place her on the crib and start to check her over while they do this I am answering a ton of questions for admittance papers. Once that is all done it is now 3am and there is a bed made up for me to sleep in. The Nurses tell me they will be in every 4 hours to check on Cara and to give her antibiotics but to try and get some sleep. Cara is sleeping some what peacefully she is now hocked up to Oxygen too. So I take off my shoes and crawl into bed and fall asleep.
Now I thought the hospital stay when having a baby was boring well this was worst. Cara was in isolation so anyone that came into the room had to have a gown on and she was not aloud to leave. We were there until Monday afternoon. I got to leave twice for a couple of hours otherwise I stayed there the entire time and over night. Tyler brought me clothes and money for food. I got a lot of sleep surprisingly and so did Cara. Once her blood test came back we knew she did not have pneumonia but RSV which in infants is worst and more deadly then pneumonia. To the rest of the world over 2 years of age RSV is the common cold in infants it presents it self like pneumonia but once the blood work is done pneumonia is not present so the Doctors say it is RSV. Most cases of RSV are a lot worst then ours. The Doctor was very happy with me that I brought her in when I did, he told me that most parents wait far to long before coming into emergency with their very sick kids. They wait until the child is limp with no muscle tone and by then the infection is all thorough the body and the child needs a longer time in Hospital to recover. I told him that to me she was lethargic because she was not nursing, eating and was sleeping all day. Very different then my little toddler that wont sleep during the day at all. So I knew something was very wrong with her.
I talked with the Nurses about RSV and this years cold and flu season, they said it was the worst one ever that they had seen. I explained how the colds seemed to cycle through the kids about every 3 weeks. They told me that Cara likely had not gotten completely well from one before the next one hit and that they just compounded each time and made her worst until finally her body could not take it anymore. One of the Nurses said that is what happened to her and that it laid her flat on her back for 3 days. I also was laid out for a day because of all the colds but got better quickly. Then about a week later Cara came down with this.
She came home Monday the 28th of February and we had to give her flow vent every 4 hours for 10 days plus a follow up with our family doctor on March 16. Because of the 3 different antibiotics they had her on she developed dirrera and it was bad. Called the Healthlink and they said to put her on pedialight and it would stop it. Sure enough the first bottle and she kept it down and her poops start to get little more solid. She lost 5 lbs while sick. Now almost 2 weeks later she has her appetite back and is nursing fine. Working on getting her back on the bottle but looks like she might prefer a sip cup which is fine with me. She is 100% back to being her normal self and you would not know by looking at her how sick she was. I am glad it is over and pray that we will not have to go through something like that again. It is wonderful to be a parent but when they are that sick you just want to die for them if it will make them better. I don't know how parents out there do it day in and day out with a child that is terminally ill. They are the STRONGEST parents ever and wish them all the best and that things will get better for their families.